Clinical Research Links & Resources

• American Medical Association (AMA)

https://www.ama-assn.org/

• Center for Human Genetics (Boston University)

https://www.bumc.bu.edu/Dept/Home.aspx?DepartmentID=118

• CenterWatch — Clinical Trials Listing Service

https://www.centerwatch.com/thehealthexchange.html

• CDC: Center for Disease Control and Prevention

https://www.cdc.gov/

• Council of Regional Networks for Genetic Services (CORN)

https://www.kumc.edu/gec/prof/corn.html

• ClinicalTrials.gov

https://clinicaltrials.gov/

• Duke University Medical Center

https://wwwchg.mc.duke.edu/

• GeneTests-GeneClinics

https://www.genetests.org/

• HHS.gov: U.S. Department of Health & Human Services

https://www.hhs.gov/

• National Institute of Health (NIH) Clinical Research Studies

https://www.cc.nih.gov/nihstudies

• National Health Information Center

https://www.health.gov/nhic/

• National Library of Medicine (NML)

https://www.nlm.nih.gov/

• National Institute of Neurological Disorders and Stroke (NINDS)

https://www.ninds.nih.gov/

• National Organization for Rare Disorders (NORD)

https://www.rarediseases.org/

• National Rehabilitation Information Center

https://www.naric.com/

• MEDLINEplus

https://medlineplus.gov/

• PCORI: Patient Centered Outcomes Research

https://www.pcori.org/

SAMHSA: Substance Abuse and Mental Health Services Administration

https://www.samhsa.gov/

• Washington University (St. Louis) School of Medicine Neuromuscular Disease Center

https://www.neuro.wustl.edu/neuromuscular/

• Yale Neuromuscular MDA/ALS Program

https://info.med.yale.edu/neurol/programs/neuromuscular.html